May 31, 2012

Let's talk about MS

I want to talk about MS. I've decided that I want to talk about it, because it's my blog, and my life, and since I'm about to give myself another shot in the butt, I think it's high time we get real about Multiple Sclerosis.

See, the thing is, most people don't know about is. Oh sure, they've heard about it, thanks to tv commercials and radio ads, but they don't know what it is, and they don't know what it does.

Unfortunately, part of that is because science is still looking for answers. They don't know what causes it. It comes and goes as it please. They have drugs that help (sometimes... it's a form of chemotherapy.... my hair is falling out) but they don't even know WHY the drugs help. It's like a big giant crap shoot with people's lives, and we're all so desperate for help that we just roll with it.

For me, at this point, living with Multiple Sclerosis is manageable.

It's not ideal, it's not perfect, it's MANAGED.

What I'm capable of doing in the household is constantly shifting and changing, and it's only with the help of each and every person in my household, and with the help of a few outside sources, that we're able to function.

My children know I have MS. We talk about it all the time. I didn't want my kids to feel afraid, or powerless about this. We've explained the hows and whys a hundred times over, because knowledge is power. And BECAUSE we have explained everything, when I am having a bad day, or if I can't do something, my sweet kids are the first people to jump in and offer to help.

Like I said, at this point, my MS is manageable, most of the time. But guess what? It's going to be summer. And my legs don't work so good in the summer, and they most definitely cannot do stairs. And guess what else? I live in a three story townhouse. Which means that for the next few months, I'll be chillaxing in my basement, because that's my life.

We'd love to move.... but it's hard to move when the neighbors are short selling their houses. It's also hard to move because I NEED to live in a ranch style house, and guess what? They don't build those where I live. So instead we're looking for something that has the laundry, kitchen, garage, and master bedroom on the same floor. And guess what? They don't build those either... unless you have hundreds of thousands of dollars to spend on a house, and guess what? WE DON'T!

But like I said, it's not bad.... it's not GOOD, but it's not bad. Then again, that could all change tomorrow, because that is the nature of Multiple Sclerosis.

And now I shall go shoot my buns.