and more waiting

Thaddeus had his CT scan, we're still waiting on the results. I guess the radiologist left out some information on the summary, so we're waiting for it to be RE-read. It's super fun to call the doctor every day and ask the same questions. 

Also in life, I'm still waiting for an answer from VCU. I know I'll be going to school in the fall, I just don't know which one. That's also fun. 

Meanwhile, I had a neurology appointment this week with a new doctor. He's closer, and they have an infusion center at their office, so that's awesome. We went over my history, and I'm going to be starting new meds. They're PILLS, so no more shots. I still have pretty bad injection site reactions with the shots, and I still have other side effects. (I've had the "flu" every Wednesday and Friday for the last 2 years.... so awesome) The neurologist said that's CRAZY TALK, and then we talked about different medication options. So, I'm going to be starting the new and just-approved by the FDA pill called Tecfidera. I got some blood work done, and I'm going to be having an MRI (to establish a new baseline), and then as long as my insurance approves, I'm good to go! 

Beyond that, life is same the old, same old. I'm ready for summer to get here, though... just so people can ride their bikes a little bit longer. I love letting the kids ride around the neighborhood until the sun starts to go down. It's tough to have to be in bed when there's still light outside. 

FTW

Sometimes I look at my old blog and think about how cute and funny it used to be, and I want to be back there again. Then I remember that it's a lot of work to be cute and funny at the same time, and I just don't have time for all that nonsense.

Meanwhile, I am in the middle of a bedtime fight with Daniel. He keeps coming down the stairs, and I keep sending him back up. Of course there's a lot more fighting and jumping up and down involved. You know in the cartoons when people jump up and down when they're mad? He's doing that. Plus screaming. And then the other kids come down and tell me that they can't sleep because Daniel is crying too loud, and then Daniel has to scream that he's not crying, and then they have to scream back, and it's a WHOLE THING PEOPLE. A whole thing that I plan to win, because I WIN AT EVERYTHING ALL THE TIME.

Waiting

Thaddeus gets to have a CT scan tomorrow. He has a weird growth behind his ear, and it hurts really bad. I think this it's related to all his ear problems, and is an infected cyst or something, but the doctor wants to do some imaging. At any rate, he doesn't feel too good. 

The other kids are doing fine. I think Taylor is about to grow a couple of inches (or one) because she's been sleeping and eating A LOT. 

Also: I still haven't heard back from VCU about admissions. Troy thinks it's good, and they're just waiting to see if they need me to fill a spot. "If they didn't want you, it would just be a no." All I know is that waiting is stinky.