November 5, 2011

Clawing my way out*

People keep asking me if I’m starting to feel better.

And basically, yes, I’m feeling better. My symptoms are improving every day, and the side effects are subsiding… it’s just hard to explain the trade off.

The injections wipe me out. I’m 8 weeks in now, and I’ve been on the full dose for 4 weeks. All of the literature I’ve read says that the side effects diminish over time. It also says that time period is about 6 months. So I have another 4 months of feeling whatever it is I’m feeling.

But back to the injections wiping me out. I do them at night, before bed, and then I go to sleep. And then it’s the next day, and I wake up for about an hour, get the big kids to school, get Taylor to a friend’s house, and then I go back to bed for the rest of the day. I set an alarm so that I will be awake when when my kids get off the bus in the afternoon, and then I parent from the couch until DadGuy gets home, when I go back to bed again.

This is highly amusing considering that 2 months ago, my doctors were complaining because I didn’t sleep enough.

They assure me that this is normal, and I realize that my “alert” period is increasing. Two months ago, after my injections, I would be coherent and alert for maybe 1 or 2 hours in a 24 hour period. Now I’m up to about 7 hours of awake time. This is a vast improvement, and I’ll take it.

Of course, I called upon the local relief society to get some relief.  Which basically means that there are some very awesome individuals that entertain my kids, drop off dinners, and bring me groceries. But I mostly appreciate the entertaining of the kids, because we can eat cereal every meal, no problem, but cabin fever doesn’t look pretty on 4 year olds.

*Title courtesy of my mother, who so precisely put into words exactly what I feel like.