January 13, 2010

skyrocket

I remember the diagnosis clearly.

It was because I'd been to so many doctors.

So many tests.

So many months .

So many co-pays.

When I finally got back into the room,

He looked at my chart.

He looked at me.

He asked me a few questions.

Yes. No. Yes. Yes. No.

Then he told me EXACTLY what had been going on with me.

He looked at my hands.

Told me why they were shaking.

He looked at my neck.

Told me why it was swollen.

He looked at my feet.

Told me why they were numb.

He told me the results of my blood work.

Said, it's a wonder you're able to even get out of bed with these kinds of numbers.

I felt validated.

It's been five and half years since I learned the name of my disease.

Hashimoto's.

It's been a learning experience.

It's been a roller coaster.

From discovering which brand of drug works best for me.

(Don't even get me started on drug companies)

To discovering the optimum time of day to take it.

It's been a struggle.

It's difficult to decipher the difference between being tired, and being TIRED.

It's hard to know if I'm cold because it's winter, or if I'm cold because I can't regulate my hormones.

So I get to give my blood every 6 weeks or so.

This morning I went to another appointment.

My numbers were way off.

So...

My daily dose has been upped.

(Skyrocketed would be more fitting.)

And I got a few new prescriptions to go along with it.

And since this is not new to me,

I know that for the next three weeks,

I'm pretty much going to die.

Because every time there's the slightest change in my medications,

I pretty much die....

I'm thinking this was a BAD time to give up soda*.



*It's going well, thank you very much. 

17 comments:

  1. I can't get get through hard times without Dr. Pepper either. Me and Dr. Pepper are tight.

    Hope everything starts regulating soon. ;)

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  2. I was diagnosed with Hashi's about five years ago. I'm readjusting to a change in meds and am trying to break a record on how much flannel and socks I can wear at one time. Good luck with your meds. It's a roller coaster I would be happy to get off any time.

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  3. Oh boy, I am so sorry.

    Do you HAVE to give up sodas right now? I'm wondering if perhaps even just one a day would be beneficial???

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  4. Comment from a notorious blog-stalker :). I can so relate! I hope they get your meds figured out. I was diagnosed with Grave's disease last year (the hypERthyroid equivalent of Hashi's). I felt like I was somehow overreacting to how AWFUL I felt ALL THE TIME. Like everyone was thinking "Stop being a lazy-butt whiner, lady!".
    It's so good to know that I wasn't- so THANK YOU for this post!
    Thyroids suck. Getting blood drawn every month sucks. the end.

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  5. Anytime I have a bad day or something goes wrong. I always say I NEED A SODA!! When Ryan left for Basic Training I drank 3 sodas that day!! 3 BIG ONES! When he texted me at 5 am to tell me he was going to Korea without me for a year.. I bawled and said I needed to soda so and I had to wait a few hours for sonic to open. Soda is a cure for almost anything! Keep your chin up!

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  6. I am glad that I am not the only one with a terrible soda addiction (and I have a bladder problem so I am a real bad girl!)

    Hope you can finally feel better!!

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  7. I wish there was something I could do for you...need a hug? I'm sending one your way! :)

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  8. Awww, girl! What a thing to go through! Dr. Pepper is the best though!

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  9. I am glad you felt validated when he was finally able to tell you what was wrong and praise you for getting up and going each and every day.

    Impressive that you have given up soda while you are in the, "dying" stage. I always knew you are amazing.

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  10. I'm sorry you have to deal with this. You're a strong woman. Hope your body adjusts to the new meds quickly. Hang in there.

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  11. MomBabe - I don't know how you can do all that you do with Hashimoto's to deal with at the same time.

    I'm sorry you are going to have to go through adjustment for new meds.

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  12. Question - If hypothyroidism isn't diagnosed until after you have part of your thyroid removed, can tests still determine if you have Hashimoto's Thyroditis? How different is treatment of Hashimoto's Thyroiditis vs Hypothyroidism?

    Hope you work through this cycle very quickly and that you feel better soon!

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  13. Hypothyroidism is a sluggish thyroid, whereas Hashimotos is an auto-immune disease where in your body actually goes about attacking your thyroid of its own accord.

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  14. I was diagnosed with Hashimoto's when I was 10. I agree that it sucks. But at the same time, I marvel that Heavenly Father has made our bodies so intricately and delicately balanced, that if even one tiny hormone is out-of-wack, it can make you feel so horrible... and yet for the most part of my life, things work well and I can live pain-free. It's pretty amazing, really. I'm grateful for that... and also for DP! :) I am a recovering addict.

    Hang in there! I sure hope they can figure out the right dose for you soon and you start feeling better quickly!

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  15. So sorry for your diagnosis. Hopefully they can get things balanced for you and you can feel good again. I have a weird thing called Trigeminal Neuralgia and it took a while from ENTs, Dentists, Neurologists to figure out so I am with you sister! The tests, copays, etc. stink!

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  16. Hi Caroline.
    How are you doing now? Is your thyroid under "control"?
    I got diagnosed with Hashimotos disease about eight months ago and I totally get the roller coaster part.
    Luckily I found a great source of support shortly after my diagnosis,otherwise I don´t know where I´d be by now.
    It still amazed me how long people have to be sick and complain about symptoms and issues before a doctor finally tests their thyroid.
    Hope you are doing better by now!

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